Cancer

This disease has touched our lives, as it has many other families.

Helena dealt with a rare form of a rare form of cancer called Adenoid Cystic Carcinoma. It was officially diagnosed in 1981. For details, see Our Story. You can sign up for our email mailing list and catch up with the saga at Helena's Memorial.

Unfortunately, in the Summer of 2005, it looks like Helena's battle will be coming to an end. I want to thank everyone who have written to us, especially those who told us their stories after reading Helena's story.

Helena's long battle with cancer came to an end on Monday, July 25, 2005 at 10:40 am when she quietly passed away.

Here are some of the most helpful sites we've discovered along this unusual journey:

• Adenoid Cystic Carcinoma This site is the place to go for information/resources concerning this disease. If you or someone you know has just been diagnosed, begin here.
• Assiociation of Online Cancer Resources (ACOR) This is a "home base" for a variety of mailing lists and web sites for different types cancer. The ADEN-CYST list is based here. You can find a comprehensive list of sources for Adenoid Cystic Carcinoma by clicking here.
• ACC Organization
• Rare Cancer Alliance
• ADEN-CYST is an internet support group devoted adenoid cystic carcinoma. Participants include patients, family members, care givers and medical professionals.
• Mt. Sinai Department of Otolaryngology (NYC) Read about some of Helena's doctors and some of their activities here.
• Fox Chase Cancer Center (PA) Learn about this Comprehensive Cancer Center and some of Helena's doctors.
• St. Luke's-Roosevelt Hospital Center (NYC) Read about some of Helena's doctors and some of their activities here.
• NCI CancerNet Information This is a comprehensive site for cancer information, sponsored be the National Cancer Institute (NCI); which is part of the National Institute of Health (NIH)
• SPOHNC Support For People With Oral, Head and Neck Cancers
• Memorial Sloan-Kettering Cancer Center (NYC) One of the world's best known cancer centers, this site includes comprehensive sections describing diagnosis and possible treatment options for many forms of cancer.
• Oncolink This site contains a collection of cancer related information from the University of Pennsylvania.

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